Kalydeco now to be covered by the province for some cases

By Dave Bradley and Katie Franzios, NEWSTALK 1010

After weeks of promises, Madi Vanstone is smiling.

The drug Kalydeco, which treats a rare form of cystic fibrosis that she suffers from, is now going to be covered by the province.

The 12-year-old from Beeton had been campaigning to have OHIP cover some or all of the cost.

The reason: It's incredibly expensive, costing $348,000 a year.

Vanstone suffers from this rare form of the disease. Up until now, her treatment has been picked up by her father's insurance, with the manufacturer of the drug paying another share.

But the family still had to pay $60,000 annually.

Health Minister Deb Matthews's says the drug will be covered by OHIP in special cases.

Funding for this drug will be through the Exceptional Access Program (EAP), which requires doctors to submit a request for funding on their patient's behalf.

Vanstone has been fighting for 14 months to have the cost of the life saving drug picked up.

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